European Parkinson's Disease Association
Encyclopedia
The European Parkinson's Disease Association (EPDA) is a non political, non-religious, and non-profit making organisation concerned with the health and welfare of people living with Parkinson's disease
(PD) and their families and carers.
Founded in June 1992, in Munich
, with a membership of 9 European Parkinson's patient organisations, the EPDA currently has a membership of 45 organisations from across Europe
.
The EPDA provides an important forum for partnership. By encouraging constructive dialogue between international
patient
and neurological organisations, and the pharmaceutical industry, we are able to develop research projects into quality of life (QoL) issues, and conferences for multidisciplinary teams and people with Parkinson's of all ages.
Links have been established between the EPDA and:
is "to ease the lives of people with Parkinson's disease and their families and carers by promoting a constructive dialogue between science and society, and by encouraging and supporting the development of national PD organisations".
Its objectives are:
Parkinson's disease
Parkinson's disease is a degenerative disorder of the central nervous system...
(PD) and their families and carers.
Founded in June 1992, in Munich
Munich
Munich The city's motto is "" . Before 2006, it was "Weltstadt mit Herz" . Its native name, , is derived from the Old High German Munichen, meaning "by the monks' place". The city's name derives from the monks of the Benedictine order who founded the city; hence the monk depicted on the city's coat...
, with a membership of 9 European Parkinson's patient organisations, the EPDA currently has a membership of 45 organisations from across Europe
Europe
Europe is, by convention, one of the world's seven continents. Comprising the westernmost peninsula of Eurasia, Europe is generally 'divided' from Asia to its east by the watershed divides of the Ural and Caucasus Mountains, the Ural River, the Caspian and Black Seas, and the waterways connecting...
.
The EPDA provides an important forum for partnership. By encouraging constructive dialogue between international
International
----International mostly means something that involves more than one country. The term international as a word means involvement of, interaction between or encompassing more than one nation, or generally beyond national boundaries...
patient
Patient
A patient is any recipient of healthcare services. The patient is most often ill or injured and in need of treatment by a physician, advanced practice registered nurse, veterinarian, or other health care provider....
and neurological organisations, and the pharmaceutical industry, we are able to develop research projects into quality of life (QoL) issues, and conferences for multidisciplinary teams and people with Parkinson's of all ages.
Links have been established between the EPDA and:
- Association of Physiotherapists in Parkinson's Disease Europe (APPDE)
- European Brain CouncilEuropean Brain CouncilEuropean Brain Council is a coordinating council founded in 2002. It comprises the major organisations in the field of brain research and brain disorders in Europe, and thus its structure involves a vast network of patients, scientists and doctors, working in partnership with the pharmaceutical...
(EBC) - European Federation of Neurological Associations (EFNA)
- European CommissionEuropean CommissionThe European Commission is the executive body of the European Union. The body is responsible for proposing legislation, implementing decisions, upholding the Union's treaties and the general day-to-day running of the Union....
- European Federation of Neurological SocietiesEuropean Federation of Neurological SocietiesThe European Federation of Neurological Societies is a body formed by 42 societies of neurology of European countries. As a result, it indirectly represents 12,000 neurologists. It was founded in 1991 in Vienna, Austria.-External links:* *...
(EFNS) - The Movement Disorder SocietyThe Movement Disorder SocietyThe Movement Disorder Society is an international professional society of clinicians, scientists, and other healthcare professionals who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic Movement Disorders and abnormalities in muscle...
(MDS) - National Tremor Foundation (NTF)
- World Federation of Neurology (WFN)
- World Health OrganizationWorld Health OrganizationThe World Health Organization is a specialized agency of the United Nations that acts as a coordinating authority on international public health. Established on 7 April 1948, with headquarters in Geneva, Switzerland, the agency inherited the mandate and resources of its predecessor, the Health...
- European Medicines AgencyEuropean Medicines AgencyThe European Medicines Agency is a European agency for the evaluation of medicinal products. From 1995 to 2004, the European Medicines Agency was known as European Agency for the Evaluation of Medicinal Products.Roughly parallel to the U.S...
- European Patients' Forum
Aims and objectives
The EPDA Mission StatementMission statement
A mission statement is a statement of the purpose of a company or organization. The mission statement should guide the actions of the organization, spell out its overall goal, provide a path, and guide decision-making...
is "to ease the lives of people with Parkinson's disease and their families and carers by promoting a constructive dialogue between science and society, and by encouraging and supporting the development of national PD organisations".
Its objectives are:
- Promote international understanding of Parkinson's disease
- Enable patients and carers to draw on best caring practice worldwide
- Provide access to the latest medical and surgical advice
- Exchange knowledge and understanding of the care of Parkinson's to help patient and carers make informed choices to achieve the best quality of life possible
- Develop knowledge and awareness of the medical, social and personal needs of people living with Parkinson's and overcome barriers to good communication with patients, their families and between professionals