Brittle Bone Society
Encyclopedia
The Brittle Bone Society is the only UK wide charity
dedicated to providing support to people affected by osteogenesis Imperfecta
(OI).
by Margaret Grant, who has OI. When she was young Margaret was aware that there virtually no support for people with OI and that many medical professionals knew little or nothing about the condition. When her daughter Yvonne was born some years later very little had changed. For many years Margaret was the driving force of the Brittle Bone Society, which was recognised when she was awarded an MBE
in 1989.
The Society now has more than 1,000 members and works closely with specialist medical units and other professionals throughout the UK. Its current chief executive is Patricia Osborne.
Charitable organization
A charitable organization is a type of non-profit organization . It differs from other types of NPOs in that it centers on philanthropic goals A charitable organization is a type of non-profit organization (NPO). It differs from other types of NPOs in that it centers on philanthropic goals A...
dedicated to providing support to people affected by osteogenesis Imperfecta
Osteogenesis imperfecta
Osteogenesis imperfecta is a genetic bone disorder. People with OI are born with defective connective tissue, or without the ability to make it, usually because of a deficiency of Type-I collagen...
(OI).
Background
The Brittle Bone Society was established in 1968 in DundeeDundee
Dundee is the fourth-largest city in Scotland and the 39th most populous settlement in the United Kingdom. It lies within the eastern central Lowlands on the north bank of the Firth of Tay, which feeds into the North Sea...
by Margaret Grant, who has OI. When she was young Margaret was aware that there virtually no support for people with OI and that many medical professionals knew little or nothing about the condition. When her daughter Yvonne was born some years later very little had changed. For many years Margaret was the driving force of the Brittle Bone Society, which was recognised when she was awarded an MBE
MBE
MBE can stand for:* Mail Boxes Etc.* Management by exception* Master of Bioethics* Master of Bioscience Enterprise* Master of Business Engineering* Master of Business Economics* Mean Biased Error...
in 1989.
The Society now has more than 1,000 members and works closely with specialist medical units and other professionals throughout the UK. Its current chief executive is Patricia Osborne.