ASBAH
Encyclopedia
ASBAH is a UK
United Kingdom
The United Kingdom of Great Britain and Northern IrelandIn the United Kingdom and Dependencies, other languages have been officially recognised as legitimate autochthonous languages under the European Charter for Regional or Minority Languages...

 registered charity
Charitable organization
A charitable organization is a type of non-profit organization . It differs from other types of NPOs in that it centers on philanthropic goals A charitable organization is a type of non-profit organization (NPO). It differs from other types of NPOs in that it centers on philanthropic goals A...

 providing information and advice about spina bifida and hydrocephalus to individuals, families and carers.

Their services are targeted towards:
  • support to parents before and around the birth of their baby, or diagnosis of the disability
  • support to the child and family on educational matters
  • specialised information and help on health matters
  • helping young people access services to progress towards control of their lives
  • responding to the needs of adults with spina bifida and/or hydrocephalus.


They do this by employing a network of advisers throughout England
England
England is a country that is part of the United Kingdom. It shares land borders with Scotland to the north and Wales to the west; the Irish Sea is to the north west, the Celtic Sea to the south west, with the North Sea to the east and the English Channel to the south separating it from continental...

, Wales
Wales
Wales is a country that is part of the United Kingdom and the island of Great Britain, bordered by England to its east and the Atlantic Ocean and Irish Sea to its west. It has a population of three million, and a total area of 20,779 km²...

 and Northern Ireland
Northern Ireland
Northern Ireland is one of the four countries of the United Kingdom. Situated in the north-east of the island of Ireland, it shares a border with the Republic of Ireland to the south and west...

 who deliver advice, support and advocacy services. Their staff also include specialist advisers in education, health and continence management.

ASBAH works in partnership with a network of independent affiliated local associations to share information and promote good practice, and to deliver a range of support and specialist services.

Advisory committees for medical matters and education are composed of professionals from the relevant fields who offer guidance for ASBAH’s services.

ASBAH’s work is financed by voluntary donations, trading activities and grants from charitable and corporate trusts.

Conductor and spina bifida sufferer Jeffrey Tate
Jeffrey Tate
Dr Jeffrey Tate CBE is an English conductor.Tate was born with spina bifida, and also has kyphosis. His family moved to Farnham, Surrey when he was young and he attended Farnham Grammar School between 1954 and 1961 gaining a State Scholarship to Cambridge University, where he directed theatre...

, CBE, has been their president since 1989. Footballer Danny Mills
Danny Mills
Daniel John Mills is a former English professional footballer best known for his time at Leeds United. His main position was right-back, though he could also play as central defender...

is a patron.
The source of this article is wikipedia, the free encyclopedia.  The text of this article is licensed under the GFDL.
 
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