Cystic Fibrosis Canada
Encyclopedia
Cystic Fibrosis Canada, formerly the Canadian Cystic Fibrosis Foundation, is a Canada-wide health charity
established in 1960, with volunteers in more than 50 chapters across Canada. In 2010, Cystic Fibrosis Canada celebrated its 50th Anniversary.
Cystic Fibrosis Canada's mandate is to help individuals with cystic fibrosis
, principally by funding cystic fibrosis research and care. The organization also provides educational materials for the cystic fibrosis community and the general public; undertakes advocacy
initiatives with, and on behalf of Canadians with cystic fibrosis, and raises funds to supports its programs. Cystic Fibrosis Canada is one of the world’s largest non-governmental granting agencies in the field of cystic fibrosis research.
To help ensure consistent, high-quality care across the country, Cystic Fibrosis Canada provides support to clinicians through grants, training awards and access to statistical information through the on-line Canadian Patient Data Registry (CPDR).
Canadian researchers are viewed as leaders in the global effort to find a cure or control for cystic fibrosis. In 1989, Canadian researchers, funded by Cystic Fibrosis Canada, discovered the gene responsible for cystic fibrosis, and they continue to play a leading role in developing new treatments.
, a Canadian service organisation, has supported Cystic Fibrosis Canada, raising over $38 million in support of cystic fibrosis research and care.
Charitable organization
A charitable organization is a type of non-profit organization . It differs from other types of NPOs in that it centers on philanthropic goals A charitable organization is a type of non-profit organization (NPO). It differs from other types of NPOs in that it centers on philanthropic goals A...
established in 1960, with volunteers in more than 50 chapters across Canada. In 2010, Cystic Fibrosis Canada celebrated its 50th Anniversary.
Cystic Fibrosis Canada's mandate is to help individuals with cystic fibrosis
Cystic fibrosis
Cystic fibrosis is a recessive genetic disease affecting most critically the lungs, and also the pancreas, liver, and intestine...
, principally by funding cystic fibrosis research and care. The organization also provides educational materials for the cystic fibrosis community and the general public; undertakes advocacy
Advocacy
Advocacy is a political process by an individual or a large group which normally aims to influence public-policy and resource allocation decisions within political, economic, and social systems and institutions; it may be motivated from moral, ethical or faith principles or simply to protect an...
initiatives with, and on behalf of Canadians with cystic fibrosis, and raises funds to supports its programs. Cystic Fibrosis Canada is one of the world’s largest non-governmental granting agencies in the field of cystic fibrosis research.
Mission
Cystic Fibrosis Canada raises funds in order to promote public awareness and support research and high-quality cystic fibrosis care.Research and Care
Cystic Fibrosis Canada's primary objective is to fund CF research and care: the organization annually funds approximately 50 research projects, in addition to scholars, post-doctoral fellows, and students undertaking CF investigations. Each year, Cystic Fibrosis Canada awards more than $6 million in grants to CF researchers, and approximately $2 million in grants to the 40 CF clinics, and five transplant centres across the country.To help ensure consistent, high-quality care across the country, Cystic Fibrosis Canada provides support to clinicians through grants, training awards and access to statistical information through the on-line Canadian Patient Data Registry (CPDR).
Canadian researchers are viewed as leaders in the global effort to find a cure or control for cystic fibrosis. In 1989, Canadian researchers, funded by Cystic Fibrosis Canada, discovered the gene responsible for cystic fibrosis, and they continue to play a leading role in developing new treatments.
Publications
As well as general information about cystic fibrosis in Canada and resources for teachers, parents, and health care professionals, Cystic Fibrosis Canada publishes newsletters and reports covering such areas as research and training grants, clinical services and annual data on patients with cystic fibrosis.Kin Canada
Since 1964, Kin CanadaKin Canada
Kin Canada is a secular Canadian non-profit service organization that promotes service, fellowship, positive values, and national pride....
, a Canadian service organisation, has supported Cystic Fibrosis Canada, raising over $38 million in support of cystic fibrosis research and care.
See also
- ShineramaShineramaShinerama is Canada’s largest post-secondary fundraiser involving students at almost 60 university and college campuses across Canada, raising money for cystic fibrosis research....
- List of cystic fibrosis organizations
- Cystic Fibrosis FoundationCystic Fibrosis FoundationThe Cystic Fibrosis Foundation is a non-profit organization in the United States established to provide the means to cure and control cystic fibrosis . The Foundation provides information about cystic fibrosis and finances CF research that aims to improve the quality of life for people with the...
- Cystic Fibrosis TrustCystic Fibrosis TrustThe Cystic Fibrosis Trust, founded in 1964, is the United Kingdom’s only national charity dedicated to all aspects of cystic fibrosis . It funds research to treat and cure CF and aims to ensure appropriate clinical care and support for people with cystic fibrosis.-Objectives:Its objectives are:*To...