Children's Craniofacial Association
Encyclopedia
Children's Craniofacial Association
Children's Craniofacial Association (CCA) Is a United States based nonprofit organization
whose mission is to empower and give hope to individuals and families with facial anomalies. CCA is a family support organization recognized by governmental, educational and medical healthcare agencies across the US.
,a film about the life of Rocky Dennis, who had a rare craniofacial condition called craniodiaphyseal Dysplasia. Cher attended an event in Washington, DC in September 1990 where families affected by craniofacial conditions testified before the House Budget Committee. During that week, she joined ten families on a visit to the White House hosted by then, First Lady, Barbara Bush
. During her Love Hurts
, Believe
and Farewell Tour
s, Cher often invited Children with craniofacial conditions back stage to visit.
A Guide To Understanding Cleft Lip and Palate
A Guide To Understanding Craniosynostosis
A Guide To Understanding Crouzon Syndrome
A Guide To Understanding Facial Palsy
A Guide To Understanding Fibrous Dysplasia
A Guide To Understanding Hemangiomas
A Guide To Understanding Hemifacial Microsomia
A Guide To Understanding Microtia
A Guide To Understanding Moebius Syndrome
A Guide To Understanding Pfeiffer Syndrome
A Guide To Understanding Pierre Robin Sequence
A Guide To Understanding Treacher Collins Syndrome
What to Expect When Your Child Goes to Surgery
What to Bring to the Hospital
Parents: You are the Official Care Manager!
Empowering Children to Cope with Teasing
Aper Feet
A Parent's Journey to Acceptance
Anthropology and Craniofacial Anomalies
Cleidocranial Dysplasia
Dramatically Increasing the Quality of Life with Prosthestic Devises
Hydrocephalus
Children's Craniofacial Association (CCA) Is a United States based nonprofit organization
Nonprofit organization
Nonprofit organization is neither a legal nor technical definition but generally refers to an organization that uses surplus revenues to achieve its goals, rather than distributing them as profit or dividends...
whose mission is to empower and give hope to individuals and families with facial anomalies. CCA is a family support organization recognized by governmental, educational and medical healthcare agencies across the US.
Children's Craniofacial Association's National Spokesperson is actor, entertainer Cher
Cher became CCA's National Spokesperson in 1990. In 1985, Cher starred in the movie MaskMask
A mask is an article normally worn on the face, typically for protection, disguise, performance or entertainment. Masks have been used since antiquity for both ceremonial and practical purposes...
,a film about the life of Rocky Dennis, who had a rare craniofacial condition called craniodiaphyseal Dysplasia. Cher attended an event in Washington, DC in September 1990 where families affected by craniofacial conditions testified before the House Budget Committee. During that week, she joined ten families on a visit to the White House hosted by then, First Lady, Barbara Bush
Barbara Bush
Barbara Pierce Bush is the wife of the 41st President of the United States George H. W. Bush, and served as First Lady of the United States from 1989 to 1993. She is the mother of the 43rd President George W. Bush and of the 43rd Governor of Florida Jeb Bush...
. During her Love Hurts
Love Hurts
"Love Hurts" is the name of a song, written and composed by Boudleaux Bryant. First recorded by The Everly Brothers in July 1960, the song is also well known from a 1975 international hit version by the rock band Nazareth and in the UK by a top 5 hit in 1975 by Jim Capaldi.The song was introduced...
, Believe
Do You Believe? Tour
The Do You Believe? Tour, sometimes also known as The Believe Tour, was Cher’s third solo concert tour. The tour which took place in 1999 and 2000, was used to promote her album Believe.-History:...
and Farewell Tour
Farewell Tour
Farewell Tour is the first live album by American rock band The Doobie Brothers, released in 1983. . It documents what they thought would be their final concert. The front cover shows Keith Knudsen cutting the strings on John McFee's guitar as a symbolic gesture. Original lead vocalist and...
s, Cher often invited Children with craniofacial conditions back stage to visit.
Family Networking
Families who are affected by facial differences feel alone and isolated. CCA puts families in contact with others having similar experiences for the purpose of reciprocal support.Annual Cher's Family Retreat
During a late night visit in Washington, DC with several craniofacial families Cher suggested an annual meeting be held where families could get together to share informatin and support. In 1991, Children's Craniofacial Association held it's first Annual Cher's Family Retreat at Disney World in Florida. Subsequent retreats have been held each year in various cities across the United States each year since then.Financial Assistance
CCA had a financial assistance program that covers costs of food, travel and lodging for families who must travel to receive medical care.Quarterly Newsletter
CCA publishes a quarterly newsletter containing articles written by craniofacial surgeons, healthcare providers, family members and others.Syndrome Booklets
A Guide To Understanding Apert SyndromeA Guide To Understanding Cleft Lip and Palate
A Guide To Understanding Craniosynostosis
A Guide To Understanding Crouzon Syndrome
A Guide To Understanding Facial Palsy
A Guide To Understanding Fibrous Dysplasia
A Guide To Understanding Hemangiomas
A Guide To Understanding Hemifacial Microsomia
A Guide To Understanding Microtia
A Guide To Understanding Moebius Syndrome
A Guide To Understanding Pfeiffer Syndrome
A Guide To Understanding Pierre Robin Sequence
A Guide To Understanding Treacher Collins Syndrome
One Page Overviews
Sleep ApneaWhat to Expect When Your Child Goes to Surgery
What to Bring to the Hospital
Parents: You are the Official Care Manager!
Empowering Children to Cope with Teasing
Aper Feet
A Parent's Journey to Acceptance
Anthropology and Craniofacial Anomalies
Cleidocranial Dysplasia
Dramatically Increasing the Quality of Life with Prosthestic Devises
Hydrocephalus
External links
- Official Site http://www.ccakids.org
- Children's Craniofacial Association Profile on Guidestar http://www2.guidestar.org/organizations/75-2265649/children's-craniofacial-association.aspx