Neuroblastoma Children's Cancer Alliance UK
Encyclopedia
The Neuroblastoma Alliance UK is a UK charity that helps children and families affected by neuroblastoma
, a type of childhood cancer. The charity helps families by helping them fundraise for their child's treatment abroad, offering support and funding research into the condition .
Despite receiving pioneering treatment abroad that his parents had fundraised for, Jack Brown died in 2009 . The charity has continued its work with families affected by neuroblastoma and by 2011 had funded treatment for 14 children abroad .
In 2011, the charity rebranded as the Neuroblastoma Children's Cancer Alliance UK, which is abbreviated to the Neuroblastoma Alliance UK .
The costs of treatment abroad vary from around £80,000 for treatment in Germany
to £300,000 for treatment in the United States
.
The charity has a number of appeals for children that are fundraising to receive treatment abroad . Some of the families supported by the charity have attracted high profile media and celebrity support for their fundraising campaigns .
, London
, which aims to improve radiation treatments for patients with neuroblastoma .
Neuroblastoma
Neuroblastoma is the most common extracranial solid cancer in childhood and the most common cancer in infancy, with an annual incidence of about 650 cases per year in the US , and 100 cases per year in the UK . Close to 50 percent of neuroblastoma cases occur in children younger than two years old...
, a type of childhood cancer. The charity helps families by helping them fundraise for their child's treatment abroad, offering support and funding research into the condition .
History
The charity was set up in April 2006 as the 2Simple Trust. The charity initially had broad aims, but the trustees decided to focus on helping children with neuroblastoma after learning about the potential to save children's lives from a parent, Yvonne Brown, whose son Jack was diagnosed with the disease .Despite receiving pioneering treatment abroad that his parents had fundraised for, Jack Brown died in 2009 . The charity has continued its work with families affected by neuroblastoma and by 2011 had funded treatment for 14 children abroad .
In 2011, the charity rebranded as the Neuroblastoma Children's Cancer Alliance UK, which is abbreviated to the Neuroblastoma Alliance UK .
Financial assistance for treatment
The Neuroblastoma Alliance UK helps families fundraise for their child's treatment abroad. Various new treatments for neuroblastoma are being trialled in the UK, but if children do not meet the criteria for a trial, or need treatment that is only available abroad, families have to pay for their child's treatment abroad .The costs of treatment abroad vary from around £80,000 for treatment in Germany
Germany
Germany , officially the Federal Republic of Germany , is a federal parliamentary republic in Europe. The country consists of 16 states while the capital and largest city is Berlin. Germany covers an area of 357,021 km2 and has a largely temperate seasonal climate...
to £300,000 for treatment in the United States
United States
The United States of America is a federal constitutional republic comprising fifty states and a federal district...
.
The charity has a number of appeals for children that are fundraising to receive treatment abroad . Some of the families supported by the charity have attracted high profile media and celebrity support for their fundraising campaigns .
Support for families
The charity helps families affected by neuroblastoma by putting them in touch with other families that have gone through a similar situation . It also holds events for parents so they can meet other families and learn more about advances in research and treatment .Research
The Neuroblastoma Alliance UK has funded research, including a project at University College HospitalUniversity College Hospital
University College Hospital is a teaching hospital located in London, United Kingdom. It is part of the University College London Hospitals NHS Foundation Trust and is closely associated with University College London ....
, London
London
London is the capital city of :England and the :United Kingdom, the largest metropolitan area in the United Kingdom, and the largest urban zone in the European Union by most measures. Located on the River Thames, London has been a major settlement for two millennia, its history going back to its...
, which aims to improve radiation treatments for patients with neuroblastoma .
See also
- The Neuroblastoma SocietyThe Neuroblastoma SocietyThe Neuroblastoma Society is a UK charity that helps families affected by neuroblastoma by funding research and running a befriending scheme for parents. The charity was set up in 1982 by a group of parents whose children had suffered from or died of neuroblastoma....
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- Band of ParentsBand of ParentsBand of Parents is a 501c3 nonprofit organization. Formed in July 2007 and incorporated in October 2007 the organization was founded by approximately 100 parents of young children with neuroblastoma who were treated at Memorial Hospital, Sloan Kettering Cancer Center .-Mission:To fund cutting edge...
- CLIC SargentCLIC SargentCLIC Sargent is charity in the United Kingdom that was formed by the merger of Sargent Cancer Care for Children and Cancer and Leukaemia in Childhood in 2005. The charity specializes in providing support for children with cancer....
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- Leukaemia & Lymphoma Research