Hi, i am a patient of CGD for the last 25 years or so. it was diagnosed only recently around three years back. from what i have heard i believe i have a mild strain.the doctor is now recommending Actimune injection. i would like to know how much they cost and what side effects have been seen. thank you for your responses.
replied to: shivasbajaj
Replied to: Hi, i am a patient of CGD for the last 25...
Hi, My son(2yrs old) is also a CGD patient. He currently takes the actimmune injections. He has been on the injections since 6mths old. He has no noticeable side effects. Although he has insurance, withot it, I believe it is around 100 dollars....
replied to: Deontaesmom23
Replied to: Hi, My son(2yrs old) is also a CGD patient. He currently...
Thank you for your response. i live in India and dont think insurance will cover it. i hope your son stays in good health.
:)
replied to: shivasbajaj
Replied to: Thank you for your response. i live in India and dont...
Hi my son has CGD also. He is 14yrs old and has been taking the interferon since he was 15 months old. He had all the side effect that are possible, but he has since grown out of them. He has his dosage changed when he gains weight and sometimes he gets achy and feverish for the first few doses. The side effects are, fever, flu symptoms, vomiting, chills, shakes, sweats.I don't want to tell you what to do but I think that if he hadn't taken this shot then he might not be with me today. I think no matter what the cost you should try to take it. It won't be fun at first but you might adapt. I hope this helps.
